Patient Engagement

CTTI Presents at the SCT 35th Annual Meeting

Posted on by Lorri Bingham

On May 18-21, 2014, the Society for Clinical Trials (SCT) will be hosting the SCT 35th Annual Meeting in Philadelphia, PA. This meeting is intended for a wide range of professionals representing academia, the pharmaceutical and device industries, government agencies and medical groups and centers. We are pleased to announce that CTTI will be present at this conference to share the ideas and lessons generated from several CTTI projects:

  • Team Lead for CTTI’s Central IRB Advancement Project, Cynthia L. Hahn will be presenting in Invited Session 8: Using a Centralized IRB Review Process in the Conduct of Multi-center Trials.
  • CTTI’s Director of Stakeholder Engagement, Bray Patrick-Lake will be presenting in Invited Session 14: NINDS INSPIRE Workshop: Patient Engagement & Patient-Centeredness – A Holistic Approach to Clinical Trial Design & Implementation. Key points for this session are related to CTTI’s Patient Groups & Clinical Trials Project.
  • Bray Patrick-Lake will also be part of a team leading a pre-conference workshop on May 18, 2014. This half-day workshop (Workshop P7) will take place from 1:00 PM – 5:00 PM and will cover the Best Practices and Innovations in Patient and Community Engagement in Clinical Trials. Advance registration and payment are required for pre-meeting workshops. CLICK HERE to complete the registration form for the SCT 35th Annual Meeting.

We look forward to connecting with the presenters and attendees of the SCT 35th Annual Meeting. Together, we can facilitate change in the clinical trials enterprise.

INNOVATION THROUGH COLLABORATION

If you are attending this conference and active on Twitter, here’s what you need to know:

CTTI Executive Director Speaks on Engaging Patients to Drive Innovation at Recent ACRO Meeting

Posted on by Lorri Bingham

At the 2014 ACRO Annual Meeting, CTTI’s Executive Director Pamela Tenaerts spoke on the Innovation Panel. Comments focused on how increased patient involvement could be the disruptive change needed to improve the clinical trials system. Other experts featured on this panel included Patricia Leuchten, President and CEO of the Avoca Group Inc., Dalvir Gill, CEO of TransCelerate Biopharma, Luke Williams, professor of innovation and author of “Disrupt”, and John Lewis, Vice President of ACRO. The resulting speech was recorded and is now available online:

We’d like to thank ACRO for creating this video and sharing this message. At CTTI, patient engagement is at the core of several of our initiatives, such as the Patient Leadership Council, the Recruitment Project, and the Patient Groups & Clinical Trials Project. Through the collaboration of all stakeholders, including patients, we can move toward a high quality clinical trial system that is patient-centered and efficient, enabling reliable and timely access to evidence-based prevention and treatment options.