Lisa Craine was diagnosed with Stage IV Intrahepatic Cholangiocarcinoma in 2010. She has had five recurrences with eight tumors. She is a volunteer Patient Mentor and Research Advocate with The Cholangiocarcinoma Foundation. She is also the Founder of Craine’s Cholangiocarcinoma Crew, a 501(c)3 organization granting 100% of the funds raised to bile duct cancer research.
Lisa has completed Advocacy training with The Research Advocacy Network, The Global Liver Institute, AAADV, ASCO, AACR, and The Cholangiocarcinoma Foundation. Her mentoring training was completed through The Scott Hamilton Cares Initiative. She is a board member of The Voice of the Patient Advocacy Council for the Cleveland Clinic Taussig Cancer Institute, The Cleveland Clinic Digestive Disease Institute, and The Mike Shane Memorial Fund. She is a Peer Reviewer for the U.S. Department of Defense Congressionally Directed Medical Research Program.
Lisa has advocated for liver cancer on Capitol Hill with The LIVER Act. She is a George H.W. Bush Points of Light Award Recipient and also received the Cholangiocarcinoma Foundation Mark. R. Clements Award.
She has also received recognition from the White House for her volunteer work in cancer advocacy. Her passion is serving others by helping them navigate second opinions, clinical trials and providing support, through hope, love, knowledge and prayers.