Liam McCarthy

Liam McCarthy

Liam McCarthy

Liam McCarthy was born in California where he was diagnosed with Classic Congenital Adrenal Hyperplasia, a rare disease which affects the adrenal glands. However, he has lived in South Carolina for most of his life. As a college student majoring in Business at Emory University, Liam became interested in patient advocacy and the rare disease community after being invited to give a Q&A about his rare disease by an endocrinologist. Since then, Liam has become more involved in this space by not only being involved with medical trials and studies, but also volunteering with the National Organization of Rare Disorders and joining the National Institutes of Health Patient Advocacy Group to help give more input to the overall patient wellbeing at NIH. He has also written about Classic Congenital Adrenal Hyperplasia via an online magazine publication, and hopes to continue to share his story throughout college and beyond. Finally, while Liam still plans on going down the business route as mentioned above, his plan is to go into the non-profit or pharmaceutical sector so that he can continue addressing problems for those with rare diseases.